well on the thursday 19th october 2006 i gave birth to my babies it was a bit off shock because i was told they boys but they are a boy and a girl called phoenix paul and lola-rose marie phoenix was born first by 5 mins (3:48am)and he wieghed 6lb 3 oz and lola-rose was born at (3:53am) i have just to day been discharged because they had to do tests on lola and pheonix they have down syndrome i didnt have the teat because it isnt that common in babies when their mother is young so i didnt think they might get itbut they have it which has been really hard to cope with well actually i am not i dont love them and i am on prozac for 'deppression'we are all at home i had them naturally without an epidural which am really proud off though i did ask for one and the midwife sed i was to far gone to have one my best mate robert was there with me if there is anyone else who has a baby with downs i really would appreciate a chat can u leave your msn addy or email my msn is
X-lil_miss_angel-X-2006-x@hotmail.co.uk ↓
|
|
| Name: november_mommy | Date: Nov 10th, 2006 2:39 PM |
| 20 days ago i was carrying my perfect beautifull little babies and now they are here they have DOWN SYNDROME they are nothing like my babies they arent the babies that where growing inside me they arent the babies i dreamt of they are not my perfect babies i dont think i love them ↑ |
| Name: november_mommy | Date: Nov 10th, 2006 2:39 PM |
| sorry that sounds really bad but i just need to vent ↑ |
| Name: november_mommy | Date: Nov 10th, 2006 2:40 PM |
| i am only 19 i am single my family doesnt want to no and my only support is my best mate robert i am scared ↑ |
| Name: mspeachpit | Date: Nov 10th, 2006 4:03 PM |
| i am 26 and in a wheelchair and raising a special needs baby. i could never say i didnt love her because she's not the perfect baby i dreamed of! those are ur babies! nobody's "perfect" anyway. ↑ |
| Name: momof3onewithcp | Date: Nov 10th, 2006 8:09 PM |
HI
I was 23 when I had my son. Born with a lung disease,deaf and quadripledgic cerebral palsy. My life was turned upside down. However that little boy depended on me. I know our babies are not the same. However downs babies can usually walk. Where my son will never. God only gives you what you can handle. You are in my thoughts and prayers. Please talk to your doctor about your feelings. (these feelings are natural) My msn connienoble@sympatico.ca ↑ |
| Name: deedeesgang | Date: Nov 20th, 2006 1:33 PM |
| I have twins, one was born with spina bifida. We did not know before. They are now 22 years old, and I love them both more than life itself. I am so blessed to be their mom. ↑ |
| Name: jennmom1 | Date: Nov 25th, 2006 5:49 AM |
| I am 26 and have 2 boys...my oldest is 4 and has autism. Finding out your child has a disability is heart breaking...but it should be heart breaking because you don't want them to hurt not heart breaking because you are hurt they are not perfect. I know you are having a difficult time and I can imagine you are scared because you are alone and you don't what to expect for them...but they are blessings and they are going to bring so much to your life. Talk to a doctor about how you are feeling though; feelings of sadness are normal but you need support right now. Good Luck. jlambson@travidia.com ↑ |
| Name: rachtwins | Date: Nov 25th, 2006 6:32 AM |
Hi I feel your pain I have 2.5year old autistic Twins. Give yourself time to come to terms with this, its normal to feel this way. I wish I could tell you it gets easier but it dosn't you just learn to deal with it better. I have attached something that might help you I read it and it made sense to me and I had a good cry I hope it helps you.I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Please feel free to email me woolleygang@dodo.com.au ↑ |
| Name: Kim Mori | Date: Nov 26th, 2006 6:17 PM |
You poor baby! My heart goes out to you and your special little one's in this time of need and hope! No one knows how you feel except you, we can all put ourselves in your shoes but it's just not the same, is it? You have every right to feel any way you want, your a mother now and that's what mother's do! They carry the world on their shoulders and that's the way it is! We want to fix thing's when they break, but how do you fix this? Well you just do, you learn to bond, love, care for and fight for their right's, just like any other mother does with her child! You don't have to know everything, but one day you just might! I have a 13yr old boy who has severe spastic quadripleghia, cerebral palsy, epilepsy, autisim, ADHD, vision & hearing impairments and intellectual disabilities! I don't know everything , but no-one know's my son like me! Everything happens for a reason! Your little family (and your mate Robert) have all been given to you for a reason, you just have to work out what it is! All my love and best wishes to you all xxxx
Cheers! ↑ |
| Name: sherrelle | Date: Feb 25th, 2007 2:59 PM |
| my son was born in august with d.s and it was devestating.......... he is the best thing that could have ever happened to me ↑ |
| Name: JOAN MATTHEWS | Date: Jul 2nd, 2007 10:38 AM |
| Well, we have twin-daughters who have Downs Syndrome both and are 22 years old now. ↑ |
| Name: JOAN MATTHEWS | Date: Jul 2nd, 2007 10:44 AM |
| my email address is donniematthews@hotmail.com ↑ |
| Name: kimber | Date: Jul 3rd, 2007 1:06 AM |
| Wow this is an old post but weighs deeply on my heart. Could you let us know how you and the babies are doing. ↑ |
| Name: meg | Date: Oct 17th, 2007 10:51 PM |
| Name: Molly | Date: Nov 21st, 2007 6:09 AM |
| My friend has a 2 yr old with DS & the child has been diagnosed with leaukemia. My friend is pregnant & due to deliver anytime now. She isn't old and her first child, who will turn 4 next yr, is normal and healthy. a doc recently told her that once u have a DS child, all other pregnancies there after will result in a DS child. She is devastated. She is so stressed. ↑ |
| Name: Sarah | Date: Feb 5th, 2008 5:30 PM |
It's a few years since you posted so probably won't read this.
I was 19, single and my only support was my best friend, Robert. hehehe...similar huh?
My daughter is 7 now and she has autism. She was born 14 weeks early and I know how hard it is to bond and fall in love with a child that isn't 'perfect'. I won't say it gets any easier, it's been blow after blow for us for many years now, but I know a part of me loves her. Despite it all; the meltdowns, the routines, the isolation, the frustration...somewhere in the back of my mind, screaming at me, is the thought that it'll be worth it one day, to go through all of this.
i lost my faith in God a long time ago (and I was gonna be a nun...so figure out just how bad things got for that to happen!) but I have learned to have faith in myself, and in my daughter.
Sure, this isn't the life I wanted, the life I thought I would have...but it's the life I got and I have to try and live it, no matter how hard it gets.
Lots of DS kids have a lot to offer the world, if only they're given a chance. i'm sure your kids have a wonderful purpose in life, and maybe you'll find your purpose through them. ↑ |
| Name: Sarah | Date: Feb 5th, 2008 5:36 PM |
And Robert Jones...seriously! When you had your son you can't say you were thrilled. You wondered about the impact on your life - having a NORMAL baby does that to people.
Don't tell her she's uncaring because she voiced what a lot of people don't admit to feeling in those first terrifying days, weeks, months...even years.
You, and others of your kind, who sit in sactimonious judgement of those who actually do struggle like mere mortals, with the prospect of losing more of themselves than they were willing to, who are faced with a life of providing care. I'm sure she's wondered how she'll cope and thought of how she will be affected. For God sake, she's 19! She's meant to be focussing on herself right now, not having babies. But these things happen, and disabilities occur. So she's a little more honest than most people, her sense of what is socially acceptable to say about parenthood is skewed by her youth and the enormity of her new situation.
Give her a break. She'll learn to love them. We all do, despite those initial feelings of horror, resentment, shock and fear. ↑ |
| Name: Janet Kay | Date: Mar 5th, 2008 4:59 PM |
I realize your message is two years old but I just ran across this today. I have 35 year old Down Syndrome daughter.
She has been working at Taco John's for eight years now and pretty much takes care of herself. I understand exactly what you mean about your feelings being different because these are not the babies you dreamed of. But, honey, they will be such a blessing to you. In my most troubled times of my life, Jamie always sensed my sadness and would reach over and touch my hand. It was like a touch from God. Not to say you won't have trials but the good outways the bad. And that's the same even if you have a 'normal' child. God bless you and hang in there. ↑ |
| Name: Janet Kay | Date: Mar 5th, 2008 5:10 PM |
My email address is janetkay01@comcast.net
Drop me a line anytime. would love to know how all of you are doing now. ↑ |
| Name: solyluces | Date: Mar 12th, 2008 12:30 PM |
| november_mommy, I have a daughter with down's and i know how u feel and i can understand you, but don't forget that all those little angels have in this world its you. You have to focus on the miracle of live, they grew inside of you, you nourished them for 9 months, you have to lear to see them for who they are, they are your children. God choose you to be the mom of two very special babies, and when i say special i don't mean because they have down syndrome but because they are angels that God sent to your life. Believe i know how u feel because i was devastated when i found out my daughter would have down's, but now she is the most precious part of my life. don't worry they will be fine and so will you, all u got to do is hold on ton them, with God by your side and never let go. Those babies need you and just in case u didn't know they already love you and tey know you are their mom. If you want to write back, my email is solyluces@yahoo.com ↑ |
| Name: shaydan | Date: May 23rd, 2008 12:05 PM |
| i think down syndrome is a bad desise and who ever is lauphing at it its funny stupid bitchs ↑ |
| Name: shaydon | Date: May 23rd, 2008 12:06 PM |
| Name: christine | Date: Jul 10th, 2008 3:50 PM |
| i have 23yr old twins both downs. We are very proud of them, they are sports mad and have even represented the UK playing basketball at the world special olympics ↑ |
| Name: priscilla | Date: Sep 27th, 2008 8:52 PM |
| my sister just recently had twins girls one of them has down syndrome the family is doing fine and we will take care and love her just the same. Be strong everything will work out, ↑ |
| Name: connie | Date: Oct 16th, 2008 2:42 AM |
| I'm a soon to be Grandma of twins. Recently my Daughter in Law tested positive for some protein that might mean one or both twins may have spina bifida or down syndrome. She is being sent to Dallas for more extensive tests. I am heartbroken. I'll love my Grandbabies no matter what, but just dread the hardships this will cause for the babies and family. I'm hoping this is a false positive as the Dr said 1 of 200 times a false positive happens. All I can do is hope. And if it comes to pass that my Grandbabies aren't perfect, be there and do all I can. My little Sister suffered lack of oxygen during child birth and is mildly retarded. I can tell you growing up with her was a challenge. But she was strong, stubborn and annoying. She's a grown woman now in her mid 40s and living on her own. ↑ |
|
|
