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| Name: alliegator | Date: Mar 23rd, 2008 7:56 PM |
| I'm 16. I have himpelgic CP on my left side. I feel her heartache is well.. If there's anything I can do let me know. ↑ |
| Name: lindalu | Date: Mar 23rd, 2008 10:31 PM |
| My daughter does not have Cp but early in her life she was miss diagnosed with severe Cp. My daughter is now 22 years old doing wonderful she has since been re diagnosed with a congenital spinal cord injury. Her injury had left her wheel chair dependent and unable to do many things for herself. I too had to watch my daughter go through the wonders of teen hood, at times with a teary eye. I wondered how things would turn out for her when she finally made it out of those demanding and often times stressful years. Trust me being a parent we all have heavy hearts watch our children go through rough times, when they cry we cry even though we don't show it in tears we certainly feel it in our hearts. Mark my words your daughter will be fine, one day you will wonder what all the worry was about. She seems no different then any other teen her age, she just has a limp. The other kid may have red hair or the next may have splotchy skin. Keep the faith, she will be fine! ↑ |
| Name: JENNIE | Date: Mar 25th, 2008 7:16 AM |
| i have a little girl with mild cp and i am very worried about her and i wounder how is she goint to be when she turn 18 or 19 -20 is she goint to be a happy person ↑ |
| Name: JENNIE | Date: Mar 25th, 2008 7:26 AM |
| crakers youre situation is most like mine, youre talking about youre daughter and is like youre talking about my little girl. ↑ |
| Name: mcamus | Date: Mar 25th, 2008 4:46 PM |
| My little girl will be 2 in May. At 9 months, she was diagnosed with CP. We have heard diagnoses from all across the board from mild CP to severe CP. She rolled over at a year old and now at almost 2, she is so close to walking. She just got leg braces which are a huge help in walking and now the PT is talking about botox injections in her muscles. Has anyone ever had experience with this? Every minute I get of quiet, I cry thinking about if the kids will pick on her if she will be able to walk normal some day and how she is going to deal with being different. To look at her, you don't know anything is wrong with her until you realize she can't walk and she can't keep her balance. Her physical development seems to be the only thing affected, but what if she never walks. It has been over a year since she was diagnosed and I still haven't come to terms with it, and like I said, I still cry every day. I am going to post a poem I was given once, that I read every morning to give me the strength to do everything I can for my precious little girl. ↑ |
| Name: mcamus | Date: Mar 25th, 2008 4:54 PM |
| Ode to Special Moms Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit. This year, nearly 100,000 women will become mothers of handicapped children. Did you ever wonder how mothers of handicapped children are chosen? Somehow I visualize God hovering over Earth selecting his instruments for propagation with great care and deliberation. As he observes, he instructs his angels to make notes in a giant ledger. "Armstrong, Beth, son, patron saint, Matthew. Forrest, Marjorie, daughter, patron saint, Cecilia. "Rudledge, Carrie, twins, patron saint, give her Gerard. He's used to profanity." Finally, he passes a name to an angel and smiles, "Give her a handicapped child." The angel is curious. "Why this one, God? She's so happy." "Exactly," says God. "Could I give a handicapped child to a mother who does not know laughter? That would be cruel." "But has she patience?" asks the angel. "I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wear off, she'll handle it. "I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has his own world. She has to make it live in her world, and that's not going to be easy." "But, Lord, I don't think she even believes in you." God smiles. "No matter. I can fix that. This one is perfect. She has just enough selfishness." The angel gasps, "Selfishness? Is that a virtue?" God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a 'spoken word.' She will never consider a 'step' ordinary. When her child says 'Momma' for the first time, she will be present at a miracle and know it! When she describes a tree or a sunset to her blind child, she will see it as few people ever see my creations. "I will permit her to see clearly the things I see . . . ignorance, cruelty, prejudice . . . and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing my work as surely as she is here by my side." "And what about her patron saint?" asks the angel, pen poised midair. God smiles. "A mirror will suffice." - Erma Bombeck, May, 1980 ↑ |
| Name: Charlies_mum | Date: Mar 27th, 2008 12:36 AM |
| Hi Crackers I have a 15 yld son with mild cerebral palsy and I know exactly where your coming from. Its very difficult for these kids to fit into normal schools because they are tease, laughed at and a little different but they are also not severe enough to have in a special school. I have my son in a private small community school. This is his second year and is doing very well. Although the other kids are relatively good with him they still havent warmed to "best mates". My son also has epilepsy which doesnt help. I dont know where your from but if your daughter would like someone to email her own age I think my son would enjoy the same. ↑ |
| Name: crackers | Date: Apr 20th, 2008 9:23 PM |
| Mcamus, that was a beautiful story. It really touched me to realize once again that I am blessed to be a part of this. I have learned so much by having a daughter who struggles. Some of it has been very sad as I see people who I thought I could count on for support not be interested. I have seen my daughter be treated badly by many friends, and she has forgiven easily (or so it seems). I have had to learn patience and love and grace over and over again. My daughter has come thru some hard times now that she is in grade 10, including now being diagnosed with a nonverbal learning disability. She also is recovering from an eating disorder. But we are so rich, even so. My daughter is weak on her right side. Are any of your kids like her? ↑ |
| Name: reading mom | Date: Sep 11th, 2008 2:16 AM |
| Yes; this is my daughter exactly. She's 7 and we just got her diagnosis yesterday. A "body of evidence" had to be built up before we could get that pediatric neurologist referral. At this point, because her ego is fragile, I've chosen not to tell her why we have to do all this physical therapy. I'll tell her when she's 12 or 13 even though she can really understand it now (unless she asks earlier of course). She knows something's up, but with physical therapy she's out there with the other kids her age doing soccer. She has some learning issues in that she's a visual/spatial person (even though these rely on her bodily weaknesses), so she's not a good match in the public school system. We're trying to maneuver this. Sports will probably get harder as she's older and things get competitive, though. She's a really smart kid and loves art and drama, so we just have her focus on activities that she loves. That's all that's really important. Loving what you do. And having some $$ to afford it. That's the REALLY unfair part. ↑ |
| Name: Tomi Kaye | Date: Nov 1st, 2008 9:24 PM |
| i am a 15 and i have mild cp. i try to fit in with every one and i get tease all and they all know i think. ihave a hard time getting around like walking, writing,speech promles, paying attenion. i know what it is like having mild cp its hard. hope to hear for u ↑ |
| Name: Mike Hazen | Date: Nov 4th, 2008 2:29 AM |
| I too have mild CP. I was diagnosed with it quite young. I am a triplet but one passed during birth. My living brother is fine and has no birth defect. As I grew up I was tease quite badly and asked about a billions time what happened to me. With my mild CP I just walk with a slight limp. So I guess people just think that I injured myself. I am now 22 and going for my BoE degree right now. I too never got, nor wanted, special treament and just wanted to be "normal". My question is, is there a brace or somthing in place to pervent limping? I have recently when to the doctors to see in my hip was in need of replaceing but I never heard back from them after my x ray. ↑ |
| Name: lisa | Date: Nov 17th, 2008 11:25 AM |
| dear alliegator would you be interested in emailing a friend of mine. his name is nick and is looking for teens like himself to talk to on the internet. pleae email me your email and i will forward it on to nick. thank you! be well. ↑ |
| Name: emma 22 | Date: Nov 18th, 2008 5:22 PM |
| my little girl is three and has mild cp, u would never know thats there's anything wrong by looking at her, Her development is very delayed she has just started nursery, my daughter got diagnosed a year ago i find it very hard to talk to people about it as they don't understand how much it hurts,i feel every time my little girl goes to get assessed there's always something else to add to the problems she has, it hurts so much. ↑ |
| Name: Squarewheeler | Date: Nov 26th, 2008 7:15 PM |
| I had polio age of 3, age now 75, I walk with 2 half braces, no assistance other than the braces, my folks expected me to just be like the rest, I was not asked to date, except the wrong men, I refused to date. I was just not accepted as a family member, at 17 completly on my own, I worked my way thru college, taught school 32 years, no assistance what so ever, married the wrong man, didn't know what true love as never knowing, that kind of love. Had a son, which my folks never accepted, I had him I support him or go to selter. I finished college taught school, have very good credit, now at 75 and no family, it is very scary. I wanted to be somebody, which I obtained. No one in family now it scares me. My son can not understand, you must have done something, now these are educated people, most are University and college profes. The ones who are not have the education if they want to be. My Grandfather was a MD, so on and on. Only thing I can think of I was a shame to the family. My Mom the few months I was home each year from the hospital, was never close to me. I remember no hugs, etc. But I made a life, because of the nurses that assured us all you can be what you make the choices to train for. It wont be easy for any of you but every one in this ward can be what you want to be. You will have to be educated and trained but each of you can be what you work hard to be. I did exactly that. ↑ |
| Name: Catcorn | Date: Dec 8th, 2008 12:04 PM |
| Hello Crackers, my son is 9 and has mild CP and as with your daughter cannot keep up with the "normal" kids but is not recognised by others as being disabled. He walks with a slight limp, cannot do zips or laces and finds buttons hard. Cannot cycle a bike as he has poor balance. He is weak on his left side due to a porencephalic cyst which left him with no front right lobe in his brain. He has also been diagnosed with dyslexia, learning difficulties, adhd and mild aspergers. Sometimes i feel worn out because i have to be his friend as well as his mammy as he does not mix so has no real friends. ↑ |
| Name: crystall | Date: Jan 7th, 2009 12:02 AM |
| My daughter just turned 4, and has recently had an MRI done which came back "abnormal" She walks sort of pigeon toed, she rolled over, crawled and walked very late, and is severely delayed in her speech at 4 yrs old. She drools a lot of times, and chokes on her food often, other than all of this she is a very bright girl and very capable of learning new things constantly! They say it is a form of cerebral palsy although I am being referred to a geneticist to see if he knows of a "syndrome" associated with this. He is supposed to be able to tell me more long term outcomes of this. If anybody has any similar stories, or any advice or just want to talk please please email me at criss_m480@yahoo.com Im scared to death she will never develop "normally" or that she may develop seizures, I know nothing and wont for another couple of months crystall ↑ |
