I found out from our 20 week ultrasound that our baby boy will have club feet. We have done a lot of research and feel good about what can be done for this condition. I am wondering if there are any mothers out there that can give me some advice on what kind of baby gear to get. Have you found that they will fit in any kind of car seat with the castes? Did you buy any newborn pants or shorts? Any other tips?
Thanks so much. This is also my first child. Any other advice on caring for a baby with club foot would be very appreciated! ↓
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| Name: question | Date: May 30th, 2007 2:28 PM |
| any kind of carseat will work.My little foster girl has both severe club feet has been in casts since 5 weeks(she's almost 2 now)I always bought her pants because I liked the more normal look it gave her.In the summer I put whatever I felt like on her.I didn't do much for shoes,they're more of a pain than not.Don't worry about his condition,keep your head high,it isn't bad,he will be a cool kid.We found the less our little girl could do physically the brighter she is(she has lots of other physical issues) club feet,dislocated hips and knees, internally rotated shoulders,flexed knees,elbows fixed in extension, wrists in flexion,etc.She went to the doc today and has bothe feet and legs casted,one arm casted,and the other arm in a splint.You will do fine,esp if it is your fist,club feet will seem normal for you son. :) feel free to ask me any questions.... :) ↑ |
| Name: est | Date: Jun 20th, 2007 2:38 PM |
| my daughter was born with club foot (the left one) she was put in cast at 5 days old - they seemed nomal to her as she was so young - any car seat will do and i found trousers to be better than baby groes although she wore them at night. she has just got her shoes and bar and although slightly frustrated at first she seems fine. i have bought romper suits for this stage as the shoes are not allowed to be taken off and they have poppers down the legs which makes nappy chnges loads easier. just remember a child with clu foot is normal and they soon adapt to plaster cast and brace as they know no different - it soon becomes routine - good luck x ↑ |
| Name: feet | Date: Jul 12th, 2007 3:33 PM |
| Name: B. | Date: Jul 18th, 2007 8:53 PM |
| I bought my son regular pant and pjs. We would buy them bigger. At birth he was wearing a 3-6 months just so he had room for the cast. This more for me then him. People couldnt see his cast so I wasnt getting the 20 questions. Everything will be fine. My son was out of cast and the shoes with the bar in the middle by 4 months. Now he is 8 months old sits up and rolls around all over the place. I know how you feel he is also my first. I also read everything I Could get my hands on. Oh heres a tip ask if the doctor will use a regular cast instead of a plaster one it will be easier. The plaster ones were horrible to remove we had to soak my son in water for 30 minutes, They have a machine in the hospital that cut them off but its loud. The doc. said it was ok for me take off the night before so I would but the plaster was hard. Then during one our last visits he had a regular cast put on by a different doc. Those would just unravel when you wanted to take them off. I would put warm water in the tub and my husband would jump in and hold him he loved being able to stretch his legs out and move around. Hope this helps, ↑ |
| Name: Stacy | Date: Apr 1st, 2008 6:40 AM |
| My son was born with clubfoot of the left one, hes ten months old now, wen i was in doubt or needed advice i used this website www.clubfoot.co.uk its fantastic and theres lots of people in the same position as you ... try it out im sure u will like it xxxxx ↑ |
| Name: aby | Date: Apr 8th, 2008 2:12 PM |
| i wana know if the number 6 defense ? ↑ |
| Name: shygirlelizabeth | Date: Apr 22nd, 2008 9:58 PM |
Hi,
I found out from my 20 week ultrasound that my baby would have bilateral club foot too. The good news is that it is incredibly treatable. Our daughter is 3.5 months old and just today moved onto her braces from casts.
I don't think that there would be really a lot of problems with any carseat in particular, but I hated my Eddie Bauer infant seat because I felt like I couldn't get her in it... not sure if that's club foot related.
Newborn stuff might not be that much use for you, because the casts will likely put your baby up a size. When you're looking for things in small sizes, you can pretty much get whatever you want... when looking for things after they have braces, it is most convenient to have things that don't have feet and that have snaps up the inside (simplifies diaper changes with braces on).
They are very adaptable, because they are tiny little babies, but I have to say that you should be prepared... appointments are not going to always be easy. While your baby will never remember the discomfort that is involved in casting, it is real at the time. I find that it helps if I hold her during her appointments, she screams less.
If you have any further questions go ahead and email shygirlelizabeth@gmail.com. ↑ |
| Name: gramma | Date: May 7th, 2008 1:28 AM |
| My son was born with club feet, 29 years ago. Casts were put on when he was a day old and changed every week for 4 months when he had surgery to correct. Final casts were taken off at 8 months. He walked on his first birthday. He played baseball, football, etc. He is now married and expecting their first baby. Ultrasound shows no club feet. (Nursing was not awkward, neither was using a carseat. I found that a front carrier was not comfortable, but a back carrier was) ↑ |
| Name: Amanda Leigh | Date: May 15th, 2008 3:45 AM |
I was born with clubbed feet. I had corrective surgery and was casted until well after I figured out how to walk. My parents were great for the first 5 years of my life never forgetting to stretch and mold my feet to ease my turn-in and stretch my atrophied calves (my achilles was cut and, pulled lower and reattached to my heel).
Here's some hope for you:
I became a gymnast at age 7. Began competing at age 9. I retired gymnastics at age 15 as a Level 9 (pre-elite) - just a few notches down from Olympic Quality gymnastics. I competed against "normal" girls. I won my fair share of competitions. Now I coach competitive gymnastics professionally, ride freestyle BMX and am an aspiring stunt woman.
I'm currently 6 months pregnant with my first child -- I have no worries at all that if she has this condition, she will be just fine. :) I wish you the best of luck with your baby boy! ↑ |
| Name: tammy | Date: Jun 11th, 2008 8:41 PM |
| my son was born with club feet. i found that the car seats that goes from 5lb to 80lb worked the best. they seem to be wider at the bottom. they also work well with the shoes that has the bar attached to them ↑ |
| Name: Victoria Withrow | Date: Aug 23rd, 2008 2:40 PM |
| Congratuations on your first baby! My son was born 14 years ago with severe bilaterial club feet. I am so happy to tell you he is doing amazing! He did undergo castings and surgeries for the first few years of his life, but today he has no limitations. He just made his high school football team, won MVP for his league basketball team and just loves life! He is a very typical teenager with tons of friends and busy. You would never guess today that he was born with such severe club feet. Any car seat will work for you. He may have a bit wider feet then the average so as he grows as your purchasing shoes you may want to find brands that sell wide. My biggest recommendation is after the castings (and any operations that may be needed) be sure to get into physical therapy. My son has gone to PT consistantly for several years now and it has been the best thing we could do not only for his flexabilty and muscle tone, but so he can learn what to do (stretches) to keep his ankles and legs pain free..hopefully for a lifetime. Your son will do great. Enjoy him!! ↑ |
| Name: amanda | Date: Nov 28th, 2008 4:37 PM |
my baby girl was born w club feet! she could wear 0-3 pants for awhile, but as she got bigger her weekly casts also got bigger!! so if you can, get clothes you can buy separate, i.e. a 0-3 top with 3-6 pants. also buy a 3-6 top, so later she can still wear the whole outfit even if she's grown out of the 0-3 top. i liked garanimals b/c they aren't that expensive and you can buy separate tops and bottoms. she was a little squished in her car seat but made it just fine. now i have to take off the denis-browne bar when she goes in her car seat, but it easily snaps on and off the special shoes.
tell people NOT to get you pj's with the feet!!!! she fit into them when she was still tiny with her casts, but soon i couldn't use them bc her casts were too wide due to her growing. also, the "gowns" are good for PJs since they don't have legs on them. or if you can't find any, just have him wear a long-sleeve onesie to bed...his legs won't get cold with the casting on them!! just get some super-stretch socks to go over the casts to keep his little toes warm. i found some super-fuzzy ones @ babies r us, i think they were called baby booties - very fuzzy and soft, almost silky, and super stretchie. hope that helps!!! ↑ |
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