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We just had our 20 week ultrasound. Our son looks very healthy except for a blockage in one of his kidney's. If this problem does not correct itself, he will have to have surgery once he is born. Has anyone else had any experience with this or know the outcome after birth? Thanks. ↓
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| Name: VANESSA | Date: Jul 19th, 2005 1:45 PM |
| WHAT DOES PYELECTASIS MEAN ↑ |
| Name: VANESSA | Date: Jul 19th, 2005 1:46 PM |
| HOW DO YOU KNOW IF YOUR CHILD WILL NEAD THE SURGERY? ↑ |
| Name: matt | Date: Jul 20th, 2005 8:11 PM |
| My wife is 5 1/5 months prego nd our baby has pyelectasis. can anyone help calm our fears? ↑ |
| Name: michele | Date: Jul 21st, 2005 10:06 PM |
| i am now 36 weeks pregnant. i was told at the 20 weeks ultrasound that my baby had pyelectasis in the right kidney. I went back for a followup ultrasound at 29 weeks and it resolved from the right kidney and is now seen in the left kidney. my doctor has assured me that this is a very common finding on male fetuses, which is what iam having. he said not to worry and that it will most likely resolve itself when the baby is born. ↑ |
| Name: patricia | Date: Aug 8th, 2005 1:53 PM |
| I just had my ultrasound and they said My baby has mild fetal Pyelectasis. But I can find and information about it. ↑ |
| Name: Jessica | Date: Aug 28th, 2005 3:36 PM |
| my doctor also told us that our to be born son has slight dialation of the kidneys. my regular ob told me not to worry, that this was common, but sent me to have a more in depth ultra sound.... that doctor told me that the dialation was slight but that is a "marker" that increases the chance that the baby may have down syndrome. I just took my AFP test and have not gotten the results back from that. I have researched it on the web and half of the articles say not to worry while the other half mention down syndrome so many times that there is no way to not worry. I hope this info helps..... ↑ |
| Name: Danielle | Date: Aug 29th, 2005 5:33 PM |
| Our 21 week ultrasound showed that our baby has pyelectasis. Our physician has offered the amino but we have concerns about this. Can someone share their experience with us and the reasons why they may have chosen the amino or not. I see many of you have similar questions/concerns. We would love some support. ↑ |
| Name: Anne marie | Date: Sep 6th, 2005 11:55 PM |
| My son was just born on 9/2/05, my entire preganancy I was upset, read too much on the internet and actually got TOO much information for my own good. I was told my son had pyelectasis but that it would most likely correct itself before he was born. At 38 weeks, his kidney had enlarged a lot. Now that he is here, he is just being followed up by a urologist, but he is ok otherwise. He will have another ultrasound in 3 weeks to decide what procedure will be done to correct the problem. The internet answers I got just scared me more than necessary. ↑ |
| Name: jane | Date: Sep 21st, 2005 11:06 PM |
| i went for my 20 week and my ob sent me to have a level 2 ultrasound and the doctor found a white spot on the heart and also dialation of the kidneys. yes these are soft indications of down syndrome. i am also waiting on my afp results. can anyone shed some light on this? ↑ |
| Name: jane | Date: Sep 24th, 2005 2:44 PM |
| got my results back on my quad and it was negitive. so ds is out of the picture, it put me at 1/2909 the spot on my babies heart is not a defect and the kidneys is normal is males which is what i am having. so hopefully they will correct thereselves. so to all of you i know what your going through. god bless ↑ |
| Name: Kortney | Date: Sep 29th, 2005 1:56 AM |
| Dear Danielle, I sympathize with you completely. I found out at 20 weeks I was having a boy and he has Pyelectasis. Well, I freaked out and spoke with a genectic counsler and decided to schedule an amnio. I went for the apt. and layed down the Dr. again went over the risks of the procedure. I don't know but something told me to get up off the table and leave. I think unless there are other markers present, you really need to decide whether or not knowing will put your mind at ease. I do know the risks involved with amnios are VERY low. Just be at peace with whatever you choose to do. My husband is a med student and was very supportive of any decision I was willing to make. I'm 9 months pregnant and very excited for the little man to arrive. ↑ |
| Name: Natalie | Date: Oct 4th, 2005 1:22 PM |
Dear Danielle,
My ultrasound also shows that my son has pyelectasis with no other markers for down syndrome. I did have the amnio and my son does have down syndrome. I don't mean to scare you but if you are like me, you will want to mentally prepare yourself for the future. ↑ |
| Name: Rita | Date: Oct 7th, 2005 4:28 PM |
| I also found out at my 20 week ultrasound that our baby boy has pyelectasis in one kidney. Initially, they also found a bright spot on his heart (like you, Jane), but it was gone 9 days later in a follow up ultrasound, so they are suspecting it may have been an error, an not actually there to begin with. We're very worried about downs, but decided against an amnio and are waiting for delivery to know for sure. I'm now 29 weeks. ↑ |
| Name: jane | Date: Oct 7th, 2005 11:11 PM |
| to rita, today i went for my follow up on the spot on the heart and it was gone! i am 25 weeks. now all we are looking at is the kidneys. which are still a little dialated. i go back in 6 weeks for another follow up. did you do the quad screening? that puts your odds higher or lower for downs. please respond ↑ |
| Name: Rita | Date: Oct 8th, 2005 8:19 AM |
| Jane - I didn't do the quad screening, so I don't know what my "official" odds are. The peri I saw made it clear that even if the spot on the heart disappears, it still has to be factored in as a marker, but because mine wasn't seen on the level II and was gone so quickly, they said that's encouraging. He did say that if we were just dealing with the kidney, he wouldn't even have mentioned downs at the appointment. Sort of comforting, but since I don't know for sure if the spot was ever there or not, I'm not sure what to think. The baby's kideny is still dilated, so we have to followup again at 32 weeks. You should feel really reassured about your quad results. Even if the kidney issue doesn't clear up before birth, it doesn't sound too awful. ↑ |
| Name: Krista | Date: Oct 8th, 2005 2:54 PM |
| Hi Michelle. That makes me feel better about what your dr. told you. I am worried because at my level 2 ultrasound this week the specialist mentioned the down syndrome thing to me. I did not have the AFP testing and I don't plan on it either but I pray the baby is okay. I am a special education teacher but it does not reassure me now. ↑ |
| Name: Jennifer | Date: Oct 12th, 2005 8:27 AM |
| This message is for Jane. I just had the same eperience as you. At my 20 wk 6 day level II ultrasound, the doc also found a white spot on the heart and dilation of the kidneys of my baby boy. He too said those are soft markers for downs. I had the blood test done that day and I am waiting for the results. My concern is that he told me they stop doing the blood test at 21 weeks and I was 20 weeks 6 day when it was done. He said it could affect the accuracy so I'm concerned about that too. How far along were you when you had the blood test done. Did your Dr. tell you what the cutoff is? ↑ |
| Name: Jennifer | Date: Oct 12th, 2005 8:28 AM |
| This message is for Jane. I just had the same experience as you. At my 20 wk 6 day level II ultrasound, the doc also found a white spot on the heart and dilation of the kidneys of my baby boy. He too said those are soft markers for downs. I had the blood test done that day and I am waiting for the results. My concern is that he told me they stop doing the blood test at 21 weeks and I was 20 weeks 6 day when it was done. He said it could affect the accuracy so I'm concerned about that too. How far along were you when you had the blood test done. Did your Dr. tell you what the cutoff is? ↑ |
| Name: Laura | Date: Oct 15th, 2005 3:11 PM |
My son also has pyelectasis- 3.2mm and 4mm. I was told that an amnio was not warranted unless there were other issues:
age related risk, positive afp results, etc. A great board to look at is Babycenter.com This is a very common finding. Once a parent hears "soft marker for downs", they will not rest until they seem their baby. (Unless they have chosen an amnio) I have
prepared myself for the possibility of a special needs child while
knowing that this isolated finding still leaves a woman statistically in pretty good shape. An isolated pyelectasis finding and then a diagnosis of downs is unusual unless there are other reasons to suspect a chromosomal abnormality. Doctors must tell us for legal reasons, as well as the fact that there is a cut-off of greater than 8-10mm that requires follow up after birth. ↑ |
| Name: jay | Date: Oct 17th, 2005 7:36 AM |
| My wife and I just went in for our 32 week ultrasound and to our disapointment the kidneys were still dialated. The Dr. said they are at 9mm and if it gets above 10 they will probably have to operate after delivery. We too saw a bright spot on the heart in the 20wk. ultrasound but opted not to get testing. We are not fining out what we are having, but definately were surprised to see how many boys were mentioned. Now it seems all that matters is the baby is healthy, who cares what it is. Reading these have given us more info. God bless you all and we hope for healthy babies. ↑ |
| Name: Rita | Date: Oct 18th, 2005 7:20 AM |
| Jay - I'm in the same boat as you and your wife. My baby boy's kidney was above 9 mm at my 28 ultrasound, so I'm assuming he'll need some type of treatment afterwards. Our perinatologist said in most cases, they can do a non-surgical procedure. Only a very small percentage need the surgery. We're meeting with a pediactric urologist next week to start preparing for what's coming next. ↑ |
| Name: Laura | Date: Oct 18th, 2005 1:52 PM |
| Rita- My guess is that your doctors are conservative. A 28 week ultrasound leaves plenty of time for them to diminish in size. I have read MANY studies where they have resolved after 30 weeks- they just want you to to be prepared. Even if they stay at 9, the chance of surgery is very rare. Of course they get bigger up to 30 weeks- they are still developing and growing ( which is why many resolve). From what I have read, that cut- off is only there to RULE OUT those who need surgery. (Very few ) Hope this helps some. My pregnancy has been deflated from this and I feel I have become a renal specialist in the process. :) I pray for ALL of us on these boards- that will include you to. :) ↑ |
| Name: Rita | Date: Oct 19th, 2005 7:23 AM |
| Laura - Thanks so much for posting. I haven't done tons of research on this, so it really helped to hear that there's still hope this could resolve itself. And yes, I think the doctors I've been dealing with are extremely conservative. They've been scaring me to death for months now, between this and the Downs situation. I honestly haven't enjoyed a single second of this pregnancy, and it's definitely my last (I have 2 girls and this one's a boy). ↑ |
| Name: Kate | Date: Oct 19th, 2005 8:17 AM |
| We've had several ultrasounds due to preterm labor issues. None of the ultrasounds have showed fluid in the kidneys, except one at 35 weeks. My quad screen was negative and there have been no other markers for down syndrome. The doctor said that because I was so far along and fluid had not been detected at ultrasounds done at 19, 28, 29, and 31 weeks, I am not at an increased risk for down syndrome. He did say the baby (a boy also) would be monitored after birth. Has anyone else had this problem appear only near the end of the pregnancy? ↑ |
| Name: Rita | Date: Oct 25th, 2005 1:36 PM |
| Just wanted to give an update on my appt. with a pediactric urologist. He was definitely reassuring, and said the problem is extremely common and not serious. In our case (I'm 31 weeks), it doesn't look like the problem will fix itself, though. He said there was no way to predict whether or not our baby will need the surgery, but his response was, "most of 'em don't." The baby will need antiobiotics at birth, plus an ultrasound and bladder x-ray at 2 weeks of age, then follow-up ultrasounds from there. Not too much new info. but I guess it was helpful. Interestingly, the size of the kidney was changing from between 8 and 12 mm during the ultrasound, so the measurements don't seem like an exact science. Needless to say, the urologist still considers it a mild to moderate case of pyelectasis. ↑ |
| Name: Kara | Date: Oct 30th, 2005 2:54 PM |
| Hi - I am in a similar situation as Rita and Jane - our doctor found what may have been a spot on the heart at our 20 week ultrasound, sent us in for a level II 10 days later, and thankfully, the heart looks good, but the baby does have the enlarged renal bladder (on the right side 6.3 mm). We have decided against the amnio, so have a long 10 week wait until our next ultrasound, so would love to hear follow-up information from the other moms as their results come back and their little ones are born. Thanks. ↑ |
| Name: Rita | Date: Oct 31st, 2005 7:06 AM |
| Hi Kara - Your situation is exactly like mine. I was curious if your doctor is still "counting" the spot as a marker, or is he/she telling you it was probably never there? The 1st peri I saw was almost brushing off the fact that it was gone so quickly, but another one I saw said it's encouraging and they don't usually disappear that quickly or that early in the pregnancy. But neither were very reassuring about it, and they wouldn't change my risk factor. In any case, I've got 8 1/2 long weeks to go, but I've had pre-term issues for my 1st 2 babies and delivered 4 weeks early for my 2nd. I'm getting excited and nervous. ↑ |
| Name: Kara | Date: Nov 2nd, 2005 4:04 PM |
| Hi Rita - The peri-natalogist that did the level II is not factoring the spot - maybe because she wasn't the one who spotted it and never saw it for herself, however, my primary said that it's a really good sign but still needs to be accounted for in some way. Are you having a follow-up level II for the Pyelectasis? If so, Best of luck to you and the little one. ↑ |
| Name: Rita | Date: Nov 3rd, 2005 7:07 AM |
| Kara - I've had 2 follow-up ultrasounds since the initial finding, one at 28 weeks and one at 31. The pediatric urologist I met with said there's no need for any more. They'll just check the baby when he's born. The kidney dilation has definitely increased, but my peri. said that's normal since the kidney itself is growing. Good luck to you, also! ↑ |
| Name: Trixy | Date: Nov 9th, 2005 10:14 PM |
| does anyone know what will happen if the dialation of the kidney becomes too big during pregnancy. Will they induce labor to do surgery? Or is that too risky? ↑ |
| Name: Cindy | Date: Nov 10th, 2005 12:51 PM |
| I am too scarred with the whole thing of pyelectasis, I am expection a daughter and her kidneys have both enlarged since the original findings. ↑ |
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