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Hi, I have a 21/2 year old little boy with many brain abnormalities that can not be explained. He has issues with mobility, speech, vision, fine motor skills. He also has Epilepsy. Was wondering if there is anybody out there with similar symptoms? ↓
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| Name: Kenya | Date: Mar 31st, 2006 10:44 AM |
Heidi,
My husband has Epilepsy. He has had it every sense he was born. He used to have problems with walking when he was child and wore braces, and as he grew up he had many seizures. His vision, speech and mobility are fine but he is hemiplegic on his left side. He had brain surgery 5to 6 years ago, and hasn't had a seizure sense. ↑ |
| Name: kye | Date: Apr 19th, 2006 1:28 PM |
hello,
how are you doing there,please mail me back i will help you out kye_mya@yahoo.com.i will be expecting you mail.
cheers ↑ |
| Name: Nancy | Date: Apr 20th, 2006 10:26 AM |
| Hi, my son is now 6, but has had seizures since 3 months. He was diagnosed with autism at 4 1/2. He too has had many developmental delays. His epilepsy is cryptogenic (unknown cause). He walked at 33 months and is non-verbal. My advice is to push for as much services as you can now and utilize any resources you can. Hope this helps. ↑ |
| Name: Debbie | Date: Apr 23rd, 2006 11:06 PM |
I have a 7 year old son with severe developmental delay and seizure disorder. I would like to keep in touch with someone who is going through the same thing I am. Please feel free to email me at dvcmasi@goredlake.com. Thanks and looking forward to hearing from you.
Debbie ↑ |
| Name: mother of 2006 | Date: Jun 21st, 2006 7:40 PM |
| i can kind of relate i have a 3 year old son who was born with a broken collarbone and he has developmental disabilities ↑ |
| Name: Nancy | Date: Jun 22nd, 2006 9:50 AM |
| My son has epilepsy and developmental delays. He had epilepsy since 4 mos. old. He later was diagnosed with Autism at 4 years old. He is now 6 and requires one on one attention at school in a classroom with other autistic children. My advise would be to seek out a developmental pediatrition to make sure you have a specific explanation or early diagnosis if any. What you need is to get all the therapy and services you can. ↑ |
| Name: Jenalyn | Date: Jun 23rd, 2006 9:34 AM |
| My son is 13 months. Had his first seizure at 10 months. HAs never crawled or walked. He was able to sit up better at 6 months than now. Otherwise his development is normal, but I guess time will tell. THe docs say that all the drugs and hospitalization have been a major set-back for him. It's tough having a kid with health problems. My husband and I are Christians and are praying that there will be something out there that'll cure him. Drugs aren't very nice! ↑ |
| Name: mevelt83 | Date: Jul 13th, 2006 9:16 PM |
| Does your boy have problems with tracking and focusing on objects? My son does. He has LGS (lennox Gastaut) and he also has Celebral Palsy and Visual impairment. Melissa ↑ |
| Name: Tobi | Date: Feb 8th, 2008 1:35 PM |
| My husband and I are caring for a foster child (girl, age almost seven) with epilepsy and marked developmental and speech delays. Even the child's neurologist hasn't told us how to help her to learn or grow best --- she's repeating kindergrten for the second time but still way behind in all ways. HELP!?!! ↑ |
| Name: christine | Date: Mar 21st, 2008 12:51 PM |
| i have a son that is 7 , i found out last when he was 6 yrs old he had a developmental delay, I would love to talk to anyother parent who is going thru this. my email is bscrm_d@hotmail.com ↑ |
| Name: christine | Date: Mar 21st, 2008 1:05 PM |
| i put the wrong email address its not bcsrm_d@hotmail.com its justme9300@live.ca so if anyone does have a child with development delay i would like to talk to someone thru email its all new to me . ↑ |
| Name: sandy36 | Date: Mar 22nd, 2008 7:46 PM |
| Hi,my name is Sandy,i have 2 sons,aged 15 and 11 and a half,my youngest Son Aaron,has Autism,Epilepsy,Severe Learning and Behavioral Difficulties,his Epilepsy t the moment isn`t very well controlled,he was having only absences,but the past 2 seizures that he has had has been grand mal ones,it`s a very worrying time for us at the moment,in the middle of upping his medication that he is on for the Epilepsy,hasn`t been handling the change very well.p.s am new to this forum,only joined tonight ↑ |
| Name: becky | Date: Mar 24th, 2008 8:53 PM |
| Hi, I have a seven month old son who has been having seizures since 3 months. He has had several hosptial stays and many medicine adjustments. He is currently on phenobarb and topomax, seems to be helping for now. He has significant developmental delays, we are really scared about his prognosis. He has had a normal MRI and many blood tests that have come back with nothing. Physical therapy in place for him weekly. Any one have any advice? ↑ |
| Name: marguerite | Date: Mar 25th, 2008 7:18 AM |
| Dear Moms-I am reading over you e-mails and remembering my son's early years....he is now 27 and a delightful young man. He had infantile motor spasms-a seisure disorder that lasted many months. My advice is to follow your gut-you are the only one who knows what is best for your child. Love and play with your child-look for paid services---we are still broke by not doing that...... ↑ |
| Name: ivorysmom | Date: Mar 25th, 2008 7:15 PM |
| my little girl is 2 1/2 and doesn't walk or talk yet....she is classified as mild MR but other than that they can't tell me anything except the obvious she she severly delayed...she has fever siezures...so everytime she gets hot...got to hurry up and give her tylenol or she will siez.......they haven't gave her any meds for it yet .... ↑ |
| Name: Lady Di | Date: Nov 4th, 2008 3:44 AM |
| Hi there I am a newby tonight so this is all very interesting I have two sons both have special needs one is 7.5 and has verbal dyspraxia and the other is 3.5 and has very similar and also epilepsy so some support would be fantastic I have my good days and my bad and my plain old emotional days (why me) I love them dearly but it is so hard some days the wee one has very very limited speech I have to have an ambulance to him once a fortnight and have not got his seizures under control yet so anyone wants to lend an ear and make a new friend I would be very grateful ↑ |
| Name: Charlies_mum | Date: Nov 13th, 2008 3:48 AM |
| I have a 15yld boy. He had a stressed birth and suffered a brain heamorage. As a result of that he had mild cp, has cortical vision impairement epilepsy. His seizures started with very mild absenses and now has constant seizure activity and has a wide range of mild to severe clonic tonic seizures. Surgery is not an option because damage was in the visionary area of brain. Is on 5 medications and seizures not controlled. ↑ |
| Name: Brandi Smith | Date: Nov 20th, 2008 8:58 PM |
I am an early childhood studies student and I have a few questions, if any of you would please give me your responses or opinions.
Do you feel that your child's school system supports your child's individual need? Why or why not?
Do you feel that your child is experiencing an unbiased environment while at school?
Thanks! ↑ |
| Name: rachel | Date: Nov 21st, 2008 8:33 PM |
| i have an 11yr old girl,she was 7weeks old when she started having seizures,she had 10 brain scans and all come back normal,we still dont no what part of her brain has been affected,she cannot speak,they said she wouldnt walk,but did when she was 4,she was having 60 fits a day at one point,then when she turned 7 she stopped and hasnt had one since. her mental age is around 2 or 3 ↑ |
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