|
WE ARE NOT PEOPLE WITH A DISEASE WITH ARE PEOPLE WITH A DISABILITY!!! ↓
|
|
| Name: Trinni | Date: Feb 24th, 2006 4:41 PM |
Hello Yuvetta,
My 8 year old son hasd spina bifida and is an awesome kid!!!! I absolutely do agree with you, it is not a disease and I really can'tstand it when we meet new peopleand they want to know what he has and when i say Spina Bifida and tell them what it means the say awwwww poor lil thing....????????...no poor lil you for not thinking of him as a blessing, cause that is what he is to us!!!! ↑ |
| Name: CHICKY | Date: Mar 1st, 2006 7:42 PM |
| i need to talk to someone im sad ↑ |
| Name: james | Date: Mar 17th, 2006 4:12 PM |
| will someone add me jamesdillon123@hotmail.co.uk ↑ |
| Name: shell | Date: Mar 17th, 2006 4:50 PM |
| I dont know what spino bifida is, but I would never think of someone that had it as a person with a desease. I think people in this world have a sick view of perfection, its always about the physical look. Every kid is unique and differnt and special, and if someone said "ahh poor little thing" to my kid because he didnt look as normal as another kid, id smack the crap out of them, that is ssssooo rude!!!! ↑ |
| Name: kye | Date: Apr 19th, 2006 1:19 PM |
hello,
how are you doing there,please mail me back i will help you out kye_mya@yahoo.com.i will be expecting you mail.
cheers ↑ |
| Name: opiesmoki | Date: Apr 27th, 2006 12:25 PM |
| I agree. My daughter is 8 years old and has spina bifida, I do not know exactly what you are going through, but I do understand some of the stereotyping and terrible things you must have to endure. You're right, you don't have a disease but a disability. Since I have to teach my daughter these things, it's great to hear from someone else that could teach me a thing or to also. ↑ |
| Name: mspeachpit | Date: Sep 28th, 2006 4:15 PM |
| amen! i am 26 and have spina bifida. whenever someone wants to know whats "wrong" with me i say "nothing, whats wrong with you? ↑ |
| Name: deedeesgang | Date: Nov 20th, 2006 1:32 PM |
| I am a mom to 2 children with Sb. My son is 22 years old & my daughter will soon be 13 years old. They are both wonderful & loving people. Can't imagine my life without them. ↑ |
| Name: =o) | Date: Jul 4th, 2007 11:31 PM |
| Hello.. my name is Desiree, i am 17 years old and i have Spina Bifida.. if would be good to talk with some people who also have it.. my email/msn is desiree_hilton@hotmail.com.. thanks =o) ↑ |
| Name: pebblez | Date: Jul 11th, 2007 9:32 PM |
hi, just want to ask...is it really painful, and what are you restricted doing??
and also is it heredrity, excuse typo... ↑ |
| Name: Donna | Date: Aug 24th, 2007 1:26 AM |
| My daughter is 16 years old with spina bifida. When she was younger, people-mostly adults- would say, "Poor little thing." They would say it to her or to me in front of her. They seemed to think it was a kind remark, but this was one of the most hurtful times for her,and she had crying spells at night over it. It has left scars on her emotionally...and who needs more scars??? If only we could get it across to the general public how devastating this is for someone with a disability. ↑ |
| Name: donrosie | Date: Aug 24th, 2007 1:37 AM |
| HELP....I have fears. My daughter is 16 years old, in high school, with several spec.ed. courses. I need some responses from mothers with spina bifida children who are making plans for their teenages once they finish high school. She is in a wheelchair and has limited mobility. Will she live with me all my life (which may not be what she wants) . Mostly, my biggest fear is what will happen to her if something should happen to me? Her father and I are seperated, and he doesn't play much of a part in her life. email me at donrosie30@aol.com ↑ |
| Name: 19mummy2b | Date: Aug 24th, 2007 5:57 AM |
| hi everyone im just wonderin if anyone can help me i am doin my cert 3 in disability services and i need to research spina bifida and id love to get a parents perspective on their experience so if anyone wants to help me email address is jackie_181_87@hotmail.com i understand if noone wants to discuss this with me and i apologise if anyone thinks i am being rude! ↑ |
| Name: kim | Date: Sep 11th, 2007 11:37 AM |
| hello, I am new to this chat room and i have a 3yr. old daughter with spina bifida. her name is Angel. I have only met one parent who has a child with this diability. just wanted to talk to other parents with this in common. ↑ |
| Name: kim | Date: Sep 11th, 2007 11:39 AM |
| why are you sad, chicky? ↑ |
| Name: TAMMY | Date: Sep 27th, 2007 7:33 PM |
| IM HERE TO MAKE FRIENDS AND TRY TO GET A BOYFRIEND I HAVE NOT BEEN ABLE TO FIND U GUYS ON THE INTERNET UNTIL I GOT SOMETHING IN THE MAIL THAT TOLD ME ALL ABOUT YOU GUYS. ↑ |
| Name: jenna | Date: Oct 7th, 2007 8:10 AM |
hi everyone
i am 20 yrs old and have jus been told that my unborn baby has spina bifida and they cant tell me what this means and how severe it is i feel that i need to talk to people who have been in my situation i want to keep my baby and give her the best life possible but i dont know where to start please help and e-mail me at jenna.graham4@ntlworld.com and id just like to say to trinny that i am only 21 weeks pregnant and already people are saying to me im sorry for what has happened i dont need to hear that im not sory sheis still my baby and i will love her the same as my ther child and no less i really hate it when they say it it makes me angry i dont know how i will react when people say it in front of my lilgirl when she is born ↑ |
| Name: jaycob | Date: Oct 8th, 2007 4:41 PM |
| i my name is jaycob am 12 and i have spina bifida i would like to meet and get to know other kids and pepole with spina bifida ↑ |
| Name: jennifer | Date: Oct 8th, 2007 4:51 PM |
| my son has spina bifida he is 12 year old i found out that he had it when he was born so i did not have time to prepare . at frist pepole told me lots of things and it was hard to think about want kind of life my child would have but i know i loved him and thats all that mattered.i would like to know were a from because alot of places have sbs spina bifida assation i hope for the best for you and your daughter if you would like to contacted me my e mail is qtjen21@hotmail.com ↑ |
| Name: alison | Date: Oct 11th, 2007 11:25 AM |
| Hi my names alison and im a 17 year old gal from somerset with spina bifida wanting to talk to people around same age or any1 with spina bifida. add me on msn grumpy_but_gorgeous@hotmail.co.uk x ↑ |
| Name: catherine | Date: Oct 11th, 2007 5:11 PM |
| i want some body to love ↑ |
| Name: Shannon | Date: Oct 13th, 2007 12:49 PM |
| Hi,My name is Shannon.I'm 13 and have Spina Bifida.I'd like to meet and talk to other kids with spina bifida. ↑ |
| Name: cassie1984 | Date: Oct 23rd, 2007 6:49 PM |
| Hello my name is cassie and i am a 23 year old with spina bifida, i am currently attending the art institute of houston and i am studying to be a graphic designe, for one of our assignment we have to create an inforamtional magazine and so i chose to do mine on what its like to live with spina bifida, in my book i am including my stories and experiences as well as i would like to talk with other people who also have spina bifida or parents of those who have spina bifida and include their stories in by book...if you would like to talk with me please email me as soon as possible at cassie_77459@yahoo.com...i look foward to meet you :) ↑ |
| Name: lynn | Date: Oct 27th, 2007 7:58 AM |
| i was born with a tethrod spinal bifita i trying to find out if having children is still possible i know this site is for children talk but if anybody here has have a baby and you your self have spinal bifita please write ↑ |
| Name: qwandrea | Date: Nov 2nd, 2007 4:04 PM |
| Name: Lynette | Date: Nov 4th, 2007 7:28 PM |
My son is 21 this December 2007, he has Spina Bifida and a wonderful loving human being.
I think his biggest struggle living with spinda bifida at his age is knowing if he will ever find that right someone. There are many cruel people out there that hurt or ignore someone with a birth defect. Anyone with questions or helpful hints can email me
abmol128@yahoo.com ↑ |
| Name: Misty | Date: Nov 15th, 2007 11:43 AM |
| Hello! I have a son who is 15 years old, and he has spina bifida. I would love to find some teenagers that he could chat with. It would be so good for him. I was really excited when I found this website. ↑ |
| Name: Misty | Date: Nov 15th, 2007 11:43 AM |
| OOPS! I forgot to include my e-mail address. It is pkingtexas@aol.com. Thanks! ↑ |
| Name: gillian0000 | Date: Dec 8th, 2007 7:23 PM |
| hi i hav a beautiful daughter who has spina bifida ↑ |
| Name: marcus | Date: Dec 14th, 2007 10:17 AM |
| I just wanted to know if adult males with SB can have children. I am one of the luckys 1s that can walk. if any1 knows the answer to my question please me @ nemesiz@sbcglobal.net ↑ |
| Name: jack | Date: Jan 1st, 2008 6:38 PM |
|
|
